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About


Who am I? I am a lot of things. The only one that I want to be defined by is that of a mother. Anything past that is just fluff. I used to be a lot of things too. I used to be an interior designer. I used to have an antique store in Santa Barbara. I used to live in New York. I used to work at the fabulous chic Assouline Publishing in New York but I got fired because I wasn’t very friendly. I used to work at 1stdibs in New York. It was my favorite job that I've ever had but I only had it for two weeks because I got sick.

I used to be a perfectly healthy functioning woman with not a care in the world. Then, life changed. I don’t like to just throw it out there that I have ALS, a terminal disease. ALS does not define me but it has changed the way I look at things. Nothing and everything matters to me now. I know what is important and I know what is not important. My daughter, my husband, my friends, my cat and my dog matter.

Me keeping my sanity through all of this matters and in doing so I like to do this blog. I don’t have anything to prove, I don’t have anyone to impress and I have nothing to lose. Therefore this blog focuses on everything that I like… Art, architecture, culture, fashion, flowers, food, Paris, travel, interior design, houses, gardens, faith etc. Just for the fun of it I like to focus on everything that I don’t like as well. I feel like I can be totally honest with my opinions because I have no agenda. I imagine readers will appreciate that. So, I invite you to come along on this little journey with me. It will be fun. XO XO

47 comments:

  1. So smart, funny, and real. I'm late for everything now because I've been reading your blog all morning.

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  2. Loving your energy and obvious great sense of humour!!! I too started blogging for connection and health. Be well, thanks for sharing your-ness with the rest of the world:) Tres cool.

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  3. Found your blog through your friend at Habitually Chic. Really enjoyed the post on your daughter and I can't wait to find my way back to the start.

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  4. I am moved, amused, bemused, inspired, smitten! xxx

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  5. OMG!!! I am a decorator who lives in Santa Barbara! (17 years....before that in Pasadena.....but did a project in Santa Barbara starting almost 30 years ago!

    Where was your antique store????

    Penelope

    www.mccormickinteriors.com.

    "Sea Meadow" is the project I started 30 years ago.....did I know you?

    I wish I had! I am happy to now!!!

    www.mccormickinteriors.com is my website!

    I publish a blog now and then! I am delighted to meet you now!!!

    what a spirit you have!

    Penelope

    ps ditto what "elle" says....above! (she is a great writer!!!"

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    1. Penelope, I worship you. I came to your house once, I can't remember why, and you gave me a tour and it was love at first sight. You are so talented. I know your daughter, Ella, from friends in Santa Barbara and from all Saints Church. I used to live on eucalyptus Lane by Sea Meadow and my daughter and I would ride our bikes through the neighborhood and wish we lived there! You did an amazing job. My store was called Circa on Coast Village Road. So glad you like the blog, I will check yours out as well. Thank you for writing. Thank you for sharing your talent as well. XOXO tell Ella I said hello.

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  6. I remember now!! I bought things at your estate sale and you delivered some chaises!!!

    Where do you live now???

    I love your blog!!!

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    1. What a fun estate sale. I am living in Paris now. My daughter is in college here at the American University of Paris. My husband is from Paris and his whole family is here so we thought it would be best to live here in Paris. So far, so good. I do however miss a little garden so I am looking for a house on the lake in Annecy. You are officially invited for a visit! XOXO

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  7. Following a link in the Habitually Chic newsletter, I was inspired and touched by your writings. Took my breath away, to be honest. Looking forward to your next post. Warm regards, laura

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  8. I too have come from a mention on Habitually Chic. What an absolute breath of fresh air you are, and also an inspiration. I look forward to exploring backwards. Very best wishes.
    Cindy

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  9. I've posted before - but I have to post again - I love reading your blogs. I look forward to reading them every morning! I think I'm caught up on reading all of them. You are so smart, and funny!!

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  10. Thank you for this wonderful blog. I love design and my sister lives with ALS. I appreciate that you live life and choose to not let this diagnosis define you. You are brave and strong

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    1. Dear Chandra, I am so glad you like the blog yet I so sorry that your sister has ALS as well. I know how rough it is. How is she doing? If she wants, maybe she and I could be penpals. I hope you're having a great day. XOXO

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  11. I ADORE YOU ALREADY!HUSBAND, daughter ,cat and dog............we will click I think!I had SONS however!Am in desperate need of a GIRL in my life......well I do have chickens since I owned the HEN HOUSE antique shop for 12 years...........in Northern California.I am a character of sorts too...............I go by LA CONTESSA as I lived in ITALY in the early 90's and did not want to leave!I too married a REAL European however mine is an ITALIAN.Do take a peek at me........and let me know if you are able to meet up in your new found city for just a drink. I would love that before I head off to NORMANDY!WWW.VINTAGEHENHOUSE.COM.

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  12. Hi Ellie,
    My name is Cheryl and I'm a friend of Elizabeth's. She turned me onto your blog shortly before she met you and I am enjoying it very much . Truly a breath of fresh air as they say.

    Have you ever heard of Jason Becker of Richmond , CA ? He has lived with ALS for many years now. First struck while on the brink of becoming a famous rock star . (True story .) Some young Englishman even made a movie about him a few years ago . He and his family are remarkable . Give them a google .

    Sincerely, Cheryl

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  13. Article on natural medicine from rainforest plants being used for treating ALS:

    http://ayahuascatreatment.wordpress.com/2014/09/01/ayahuasca-ethnobotanical-medicine-for-treatment-of-als/

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  14. Thank you for sharing your story! I look forward to reading your previous blogs... very witty, creative and knowledgable..Fun reading!!

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  15. What a wonderful blog, I especially enjoyed having a peak inside Coco's apartment! Your daughter is lovely, I have two teenage boys and even though they're not always interested in talking to me, they are everything! One of my son's is gay, so I get more info out of him - unfortunately he is off to college next fall. Sigh. Luckily my husband still talks to me. And btw, you are lovely too! Take care of yourself and the leopard hat is magnifique!

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  16. Ellie,
    You are just a superb, consummate raconteur -- Thank you so much for your beautiful, inspiring and heartbreakingly honest blog.

    Hugs,
    Sabrina

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  17. Actually many people solve als and heal. In fact some friends of mine are even making a film about it. Their home page, which includes a trailer for the film, is here. http://healingals.com/

    Also I have been blogging about people solving als here. http://healingchronicles.com/

    You too can heal yourself, I am sure.

    All the best.

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  18. I love your tree, I say this with all honesty. If I was to pick one out, and saw yours first, it would be the one I would buy. Lots of places to hang vintage ornaments, without touching all kinds of goofy limbs in the way. And maybe a few pieces of tinsel since I do have the old lead kind that I found a few years ago on e-Bay.
    This is my very first time to your blog, and I am so happy to have found you. It is people like yourself, that bring the "Gimme More" sometimes never satisfied people ,(like myself) down to earth. Altho, I am in the twilight of my life at 75, sometimes I have to tell myself, to grow up, like today, after reading your blog. Your are an inspiration with your humor, and living with ALS. I look forward to reading your blog each time you should post, and I will be reading some of the older ones too, to catch up... Wishing you a very Merry Christmas, and days ahead of feeling comfort and less stress...Bonnie, in snowy white, cold Wisconsin

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  19. Hi - I just found this blog and think you're awesome. I only read about the tinsel and then I read about you. You're great. My mom had ALS, and something kind of funny - she LOVED tinsel and put it on strand by strand. And her first Christmas with my dad - he got a tree on Christmas Eve - they did that back in 1960 - and she sent him back out to get another one because the tree was pathetic. ALS kind of sucks, but I'll pray for you and your family, and I will say that we worried about my mom suffering so much but it wasn't so bad in the end.



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  20. Found you from a blog called Going Gently in a tiny village in Wales, UK. Apparently you have a post titled, "Fat Fuck"? When I saw that I knew your blog would be my kind of read and you would be my kinda gal. Can't wait to get started. Love from across the pond. X

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  21. I was just forwarded a link by my good buddy Dani from Mop Philiosophy and can see why she's a big fan. Great post on E. Alt and love your attitude and priorities! I'll be darkening your door quite a bit henceforth...

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  22. I came across a happy birthday message to you (happy birthday by the way) and found your blog and I'm seriously in stiches. I think you and I would be great friends. SO, if you ever get to Kansas City, first drink is on me. =) Also, prayers for health and healing.
    Lanie from KC

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  23. Do you know what ? I love you to bits !! I'm a 72 yr. old broad from Canada and I'm telling you to hang on little tomato, there is an extra bed here if you ever want to run away from home (bring Gracie)!
    Love, Lorraine

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  24. I love you and your blog and your sense of humor, Ellie (the Picasso museum post made me laugh out loud). Though I don't know you I wanted you to know that I think of you sometimes and hope that you're doing alright. Best wishes to you and your family!

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  25. Just found you..you are an all-around inspiration...you sure you're not from Texas...cause you have the spirit in you so common amongst great Texas women. My Gan-Mommy sounds much like your grand-mother...I feel our generation is lacks the style compared to their well-dressed/coiffed before-the-day-started style.
    I look forward to your future entries!
    XO
    Suzette

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    1. Suzette! I am from Texas! I was born in Dallas Texas! You totally knew! Birds of a feather flock together. XOXO :-)

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    2. I'm loving this! I'm a native Texan, born in Dallas and still live not far away. Texas women rock! ;-)

      xoxo
      Pat

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  26. Ellie,
    I kind of feel like I know you. I don't, but it feels like it. I know you don't know me! I love your style in every regard. I'm a novelist and starting an email newsletter about books and inspiration and movies. With a poem thrown in here and there. Do you mind if I send you an invitation to subscribe?
    Best wishes,
    Kristen (K.D. Lovgren)

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    1. Sure Kristen! Just send it to my regular email address on the home page. :-)

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  27. You are still too young to know how extraordinary you are in every way!!!! You are a treasure , I am so delighted to have found your bog and will certainly buy your

    book for everyone ,gifts all around .

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  28. You're an interesting person.

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  29. You are amazing! I am so jealous Tom gets to come and visit you in September. Love, love, love you. If you still lived here, you'd be my very best friend :)

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  30. Ellie, just found your blog. You are what my father would have called, a hoot. You are an inspiration and I am sending you love and prayers and hug.s

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  31. Hi Ellie, My friend from SB just forwarded me your blog. It's great. We should meet! I am also a Santa Barbaran, living in Paris for the second time. First time was from 2007-2009, then we were back in SB for 5 years, and now we're here again, "semi-permanently" this time. I'm sure we have many mutual friends from All Saints, etc. Email me if you have time and we can get a coffee or something! tonimcclintock@gmail.com. Best!

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  32. I've been reading and rejoicing with Heather's blog "Lost in Arles" for a few years. She is so excited you are moving to her neck of the woods - friends are so important, and having them nearby is icing on the cake! Good luck with your move. I wish some day to meet both of you - I am inspired! I will be subscribing to your blog just as soon as I finish this comment!

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  33. Hi Ellie, your blog is the best! I'm from SB too (hi Toni!) and was friends with Heather and Colby. I now live in NC and love your stories, especially the references you insert (all saints, Yolanda, CVR, Circa, etc) as it makes it all seem like yesterday. I loved your store and style! Thank you for your brutal honesty and your biting wit as you navigate life with ALS. You are amazing. You inspire me to travel more ... and to inspire my kids to travel as well. Happy 2016!

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  34. Hi Ellie! Thank you for making my day. You are amazing, awesome, and real. God Bless You! I look forward to reading your blogs. Gina

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  35. Hi Ellie....your picture gives me "life" demonstrates the many facets that we as women are, all beautifully hanging around you as a painting....I simply love it. I too look forward to reading your post.

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  36. So happy for you, Ellie, that you are home. Enjoy it for all it is worth!
    As always I pray for you daily. You give me strength to fight my disease....
    Sending you all my love and hope,
    Lily

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  37. Hi Ellie,
    I found your blog through Yolanda's instagram account. First of all let me tell you that you are hysterical and so entertaining. You definitely have a way with words. Also, you are very inspirational and so is your husband. In the midst of this struggle you are very blessed to have a wonderful support system surrounding you. I wish you the best of luck!

    Angie-Ellie's mama /my daughter's nickname is also Ellie-:)

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